Karen has a fever so they won't let her see the baby until the fever is broke for 24 hrs. The NICU sent to her room a computer so she could watch our baby on a webcam they set up. Karen is having a hard time not being next to her, but knows if anything happens she will be notified. Mom needs to get better and take it easy so she can be strong.
Baby is doing about the same today. She is still on the meds and we just wait. Clint sits by her side every hr, except during the times the NICU is closed. He hates to leave her. The Bishop came today and helped Clint give her another blessing. Clint was given the consent to bless and name the babe should the need arise. The prognosis is still dire and we feel like they keep waiting, waiting for her to get better is not something they seem to feel hopeful about, so they seem to be waiting for her to die. We saw her eyes for a few seconds tonight. By 11 pm Karen was able to go back to the NICU to be with our baby. She knows her parents.
The NICU called Karen and explained things to her. She hadn't really understood how sick our baby is because she chooses to see things optimistically. Clint is being prepped for the worst outcome and it feels like all any one can talk about is death. After talking together we choose to not talk about death unless it comes. We choose to see life and focus on life rather than on anything else. She chose to live and we honor that choice by not preparing her to die.
Grandma and Grandpa come to visit and they are good company for us. Karen's older brothers are flying in, they can't stay away and we are grateful for family that can come and those that wish they could.
I need to clarify something, the nurses were great, the respiratory therapists were great. They did try to keep things optimistic and hopeful for us. they wanted us to be prepared, as her parents, for whatever outcome was there. It felt at times like we were battling a uphill climb, but the support we received was amazing.
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